“Our battered suitcases were were piled on the sidewalk again; we had longer ways to go. But no matter, the road is life.”
– Jack Kerouac, On the Road, Part 3, Ch. 5

WHY? Because without hope, there can be no better expectations. I KNOW that I can provide some hope for those dealing with an undiagnosed illness (as I did for 19 years with Hirschprung’s Disease), a confirmed illness (as I do with MS) or on ongoing health battle (as I always will, with an eating disorder).

Contact me. I want to hear you, because I know what you’ve gone through and I know where you’re going: STRAIGHT to the top to shine your light bright. You are not your disease. You are a miracle. Expect it.

Love & Light,


4 thoughts on “Why?

  1. Hi Rhea.
    I want to thank you for writing your beautiful worlds. You are an inspiration. i just had the opportunity to meet your husband at Green Planet Grocery. My daughter noticed his Be love tattoo. (Which we love by the way) I was happy to meet him. He was surprised that I knew who you were. I was at the Stanley Theater for the Jason Mraz concert so I remembered that you were the lucky girl that got to dance with him. I also watched the you tube video. That must have been Awesome. Good for you. I was happy for you.That was a great concert.
    I just want to tell you that my family and I have recently gone organic and part raw foods and I have to say that I have never felt better. I am happy that our paths have come towards each other. I hope that we will meet one day. We bought Emmys Macaroons and we simply love them. Thank you for all that you do.
    I wish you love, peace and happiness.
    in gratitude, Linda Schad

  2. Rhea, I just received an email from your mom about your blog. I am happy to say I have joined your mailing list and hope to continue to receive updates on your status. My name is Colleen and like you I have an illness. I have Crohn’s disease. I’ve had it for four years and in those four years I have had a lifetimes worth of complications, surgeries and well the list goes on. I too have a blog that I would be happy to share with you if you would like, I can email it to you. Keep your chin up! No matter what happens always remember that things could be worse and always focus on the good things in life because the things you can’t control are just that…out of your control. It’s better to just keep smiling! Your family sounds amazing and extremely supportive which you need in your circumstance more than anything:) Things will get better, I promise. I have TONS of info on insurance programs and information on drug companies that will help pay for your medications. I work in a medical facility and am able to reach out to people that will be able to help you if need be in finding out information for yourself and in general helping you be the best advocate you can be for yourself health wise. I wish you the best of luck with everything, you seem truly amazing and I have found that people who struggle with incurable illnesses are the brightest stars in the bunch…and you my friend are shining so brightly! Good luck with your blog and SHINE ON!

  3. You have been and always will be my Rhea-Sunshine, my joy and world. Thank you for being my daughter, but most for being you, a gift to the World!

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